Well it is funny that I can feel better one day about the situation I am in and then the next day be so mad I want to yell and scream.
I went and saw the gastro on Feb 6, 2008. He was a very nice man and took everything my significant other and I had to say very seriously and never hesitated to answer all of our questions. The outcome of the appointment was that he confirmed I have adhesion's disorder as well as that adhesion's will not show up on any exams and that surgery is the only way to get rid of the adhesion's that are causing the problem. He also explained that what usually happens is the a person will have relief for a while; in my case a year or two then eventually little to no relief as they grow back faster. That leaves me with wondering What next? I know this information is not new to any of us but just hearing it confirmed by a specialist made me feel a bit better and that no I am not going crazy. This doctor is trying me on a digestive aid to see if that might help lesson some of my symptoms. He has scheduled me for a colonoscopy for March 20 to make sure there is nothing else going on. The doc explained that the reason they do test is to rule everything else out and if (in my case) everything comes back normal they know my symptoms and pain are caused by adhesion's. He has also referred me back to the surgeon who did my first lysis of adhesion's surgery just so I can talk to him and let him know what is going on and maybe he will have some suggestions to assist me to cope. I also want to tell him about the bypass being taken out and if he thinks that is the cause to my current situation.
I spoke to my ins. and let them know what the gastro had to say. The gastro stated that in my current medical condition work is not an option at this time. The ins. got defensive and said "he needs clinical evidence". I asked if the other gastro had any suggestions and was told no he said in his report there is no finding of any restriction that would prevent me from working (I can not remember word for word). I was so upset as I am tired of trying to explain what is really happening to me and if I had my way I would be working but tell my body that. When I asked ins to request a copy of this gastro report that explains things I was told they would not do that I had to get it and fax it immediately if I want them to consider it and that I could always appeal their decision. I have to call my employer back on Monday they are going to try and help me, they are so supportive I am lucky to have such a great employer. I can not go back to work as I am a risk to myself as well as to the individuals I work with. Besides if I can not walk to the corner store with our being in tears and being very nauseated how the heck will I hid this to in order to work. As far as pain management I still have none. The gastro feels I should have better management but did not give me anything to try. I am not one for taking pills but I am to the point that if I have to be off work for a long time I want to have some relief so I can try some exercise or other strategies but right now the only thing I can do is lay down and even that just takes the edge off so I am not in tears.
I guess the only thing I can do is my best and not give up. I am getting very tired of hurting and feeling like pucking but I realize this is my life and I have to make the best of it.
Thank you to everyone, just from writing this I feel better. I guess I just had to get it out, frustration is what is driving me nuts right now.
Talk to you all soon